I cannot believe a pain management doctor would continue to treat a child on so many opiates via phone. Joshua was treated for 6 months after Dr. T before ever meeting a new doctor team.
- Written June 28, 2013 1:41am by Kate Parker
Bethany has to go to Portland to see her rheumatologist & cardiologist and Joshua gets to go along because his palliative care doctor wants to meet him. Yes, the doctor who has been doing such an amazing job calling all of the shots with regards to medications & treatments to help Joshua live to the best of his ability for the past 6 months has never met my child. She took over from Dr. T when he left Legacy Emanuel. I have met her and visited with her a half-dozen times when Dr. T introduced her to me while Bethany was in the hospital for her heart surgery & follow-up appointments last year, but Dr. G has never met Joshua. She really WANTS to, though, and preferably before a funeral, sooooooo, because I have to take Bethany up to Portland, I will take Joshua, too. Dr. G said that giving Lorazepam might help Joshua to travel better. I anticipate having to drive for a bit, then stop so he can lay flat for awhile before we drive some more. I am nervous about how he will do away from home for a few days and would be grateful for prayer that he handles it all right. We will be traveling on July 7th.
Today has been pretty good. With the help of lorazepam, Joshua has been relaxed & happy for most of the day. He is needing more breakthough fentanyl and says that if he
I cannot believe she tracked this doctor down via a personal page.
- Written March 19, 2013 10:38am by Kate Parker
I sent an email to Dr. S last night, asking if she would please contact Melissa (Dr. T’s replacement palliative care doctor at Emanuel) to ask about changing Joshua’s methadone dose. I emailed Dr. T last week (via his photography website, which I know is SO professional, but it was the only way I knew to get in touch with him), asking if he was going to provide Dr. S & me with his contact information so we can keep in touch regarding Joshua’s care. You know, since he assured me repeatedly via email & in phone calls & in person when I saw him (during our discussions about Bethany) that he would always remain available to Dr. S & me for Joshua’s care even though he was changing jobs and going to a different hospital? His response was that for now, he thinks it would be better if we contact Melissa & Kathleen since his new job doesn’t allow him the independence that he had at Emanuel and blah, blah, blah (other excuses/justifications ~ it is probably completely legit, but the feeling it left me with was the same… that of being abandoned by the doctor who was the head of my son’s medical team). So… please pray that not only can Dr. S contact Melissa, but that Melissa (who has never met Joshua) will make very wise choices for my little boy’s care.